February 15th is significant because February is Rare Disease Month and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman syndrome.
Every year, International Angelman Day (I.A.D.) is observed on February 15 to create awareness about Angelman Syndrome, a neurogenetic disorder affecting chromosome 15 that causes intellectual and developmental delays. Angelman Syndrome is a rare disorder occurring in one out of 15,000 babies. It affects males and females equally.
International Angelman Day (IAD) is an opportunity to raise awareness of Angelman syndrome on a global scale! Two AS parents started IAD in 2012 and engaged 31 Angelman syndrome organizations from around the world to join their efforts. Today, IAD has grown to over 50 AS organizations participating worldwide!
The purpose of this day is to:
- Raise awareness worldwide of the condition;
- Mobilize people to action & encourage fundraising for the individual organization in their country;
- Promote research and educational resources in the organization’s own country; and
- Remember those people with Angelman syndrome who are no longer with us.
How can you get involved in 2023:
-